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  • You sign up log in groups nord rare disease support community home new recommended discussions journals members about sign up all active recommended topics start a discussion hemangiopericytoma by wvstewartfan · july 3, 2011 at 9:42 pm · 2 replies in getting a diagnosis 0 recommend recommended processing...    problem    options options: print shared with the public i was diagnosed aug. 09 with hemangiopericytoma deep in the muscle of left shoulder. The tumor was removed without biopsy because the dr. Believed it was a lipoma,it was followed by 6 weeks of radiation after the pathologist report came back with hemangiopericytoma diagnosis the dr. Said it was cancer and he knew very little about it. I was told i needed ct scans every 6 months for 1st few years than 1 a yr. For life. The dr. Has not done a scan for 8 months. I have not felt well at all for the last several months the dr. S dont believe me sometimes i have alot of pain on the left side from shoulder to upper thigh and a general feeling of tired sickness. Does anyone know if the hpc causes other problems before the tumors are detected? I struggle most days just to do simple tasks. Why wont dr's listen to a patient. I have lost lots of weight friends and coworkers are asking questions that i ask myself. I am frustrated and need answers. Explore topics in this post explore topics in this post: cancer hemangiopericytoma pain 2 replies    oldest first newest first by teresastl reply 2400307 august 12, 2011 at 2:13 am report post my sister was recently diagnosed with a hemangiopericytoma after a brain tumor was removed. generic viagra tablets 自動車保険見積もり I joined this site looking for info and saw your post. I can't imagine how tough it has been trying to get the doctor to listen to you. I hope you are able to get a second opinion or find a doc who is willing to listen. Sometimes teaching hospitals can be a good resource or a research hospital. Good luc. Poulet & Porc - 2
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